<![CDATA[Talasemia merupakan penyakit genetik dan kronis yang dapat menyebabkan anemia berat sehingga mengganggu kualitas hidup. Penelitian ini bertujuan untuk mengetahui gambaran dan faktor apa saja yang memengaruhi kualitas hidup penderita talasemia anak di RSUD Al- Ihsan Kabupaten Bandung tahun 2019. Subjek penelitian adalah pasien talasemia anak di RSUD Al-Ihsan Kabupaten Bandung yang memenuhi kriteria inklusi. Data diambil menggunakan teknik total sampling dengan jumlah subjek 65 orang. Desain penelitian bersifat analitik dengan rancangan potong lintang. Penelitian menggunakan alat berupa kuesioner pediatric quality of life (PedsQL) yang berisi 23 pertanyaan. Hasil analisis univariat didapatkan kualitas hidup total subjek penelitian adalah buruk dengan rerata skor 68,9. Fungsi fisik, emosi, dan sekolah buruk dengan nilai rerata skor <80. Analisis bivariat dengan chi square test didapatkan hubungan bermakna antara faktor-faktor dengan kualitas hidup dengan nilai p≤0,05. Analisis multivariat dengan multiple logistic regression test didapatkan faktor yang paling dominan memengaruhi kualitas hidup yaitu fungsi sosial dengan koefisien beta 1,823 dan nilai p=0,039. Simpulan, rerata kualitas hidup penderita talasemia anak di RSUD Al-Ihsan Kabupaten Bandung adalah buruk. Fungsi yang terganggu yaitu fungsi fisik, emosi, dan sekolah. Faktor yang paling dominan memengaruhi kualitas hidup dengan nilai tertinggi yaitu fungsi sosial. FACTORS THAT INFLUENCE THE QUALITY OF LIFE OF CHILDREN WITH THALASSEMIA IN RSUD AL-IHSAN BANDUNG IN 2019Thalassemia is a genetic and chronic disease that can cause severe anemia that disrupts the quality of life. The purpose of this study was to determine the description and factors that influence the quality of life of children with thalassemia in RSUD Al-Ihsan Bandung in 2019. The subjects were pediatric thalassemia patients in RSUD Al-Ihsan Bandung who met the inclusion criteria. Data were taken using a total sampling technique with a total 65 subjects. This study design was analytic with cross sectional design. This study used a tool of a Pediatric Quality of Life (PedsQL) questionnaire containing 23 questions. Univariate analysis results found that the total quality of life of the study subjects was poor with a mean score of 68.9. Physical, emotional, and school functions were poor with an average score of <80. Bivariate analysis with chi square test found a significant relationship between factors with quality of life with a p value ≤0.05. Multivariate analysis with multiple logistic regression test found that the most dominant factor affecting the quality of life was social function with a beta coefficient of 1.823 (p=0.039). Conclusions, the average quality of life of children with thalassemia in RSUD Al-Ihsan in Bandung is poor. Functions that are disrupted are physical, emotional, and school functions. The most dominant factor influencing the quality of life with the highest value is social function.]]>
