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All Journal Sari Pediatri Paediatrica Indonesiana Belitung Nursing Journal Jurnal Gizi Klinik Indonesia
Elisabeth Siti Herini
Bagian Ilmu Kesehatan Anak Fakultas Kedokteran Universitas Gadjah Mada /RSUP Dr. Sardjito, Yogyakarta
Biochemistry, Genetics & Molecular Biology Health Professions Medicine & Pharmacology Nursing Public Health

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Journal : Belitung Nursing Journal

 1 
CAREGIVERS’ EXPERIENCE IN MEETING SELF-CARE NEEDS OF ADOLESCENTS WITH AUTISM SPECTRUM DISORDER: A QUALITATIVE STUDY Lilis Lestari; Elisabeth Siti Herini; Indria Laksmi Gamayanti
Belitung Nursing Journal Vol. 3 No. 4 (2017): July - August
Publisher : Belitung Raya Foundation, Indonesia

Show Abstract | Download Original | Original Source | Check in Google Scholar | Full PDF (273.013 KB) | DOI: 10.33546/bnj.123

Abstract

Background: Autism spectrum disorder is a complex developmental disorder, which increased rapidly than other developmental disorders in the world. This complex disorder affects a child’s self-autonomy, which has become a challenge for their parents or caregivers. Objective: This study is to explore main caregivers’ experience to meet self-care needs of adolescents with autism spectrum disorder in Pontianak, West Borneo, Indonesia. Methods: This study employed a qualitative design with semi-structured in-depth interviews. Seven main caregivers who are living together and taking care of the adolescents with autism spectrum were selected using a purposive sampling. Triangulation was conducted to ensure the trustworthiness of this study, including interviews, observations of self-care activities, documents such as photos, learning reports, and field notes. Participants’ statements were recorded using a voice recorder, and then transcribed, coded, interpreted, and categorized to form main themes and sub-themes. Results: The study identified three main themes: 1) autonomy in self-care, 2) care effort, 3) feelings, supports, and expectations. These findings emphasize the potentials of the children with autism to be autonomous in their daily self-care. Conclusions: Adolescents with autism spectrum disorder can potentially meet the needs of their daily care independently. This article has been corrected with a separate erratum: https://doi.org/10.33546/bnj.1146
Co-Authors Abdul Wahab Adeta Stefianti Isnoor Agung Triono Braghmandita Widya Indria Laksmi Gamayanti Kornelius Dandung Bawono Lestari, Lilis Melina Dian Kusumadewi Nurputra, Dian Kesumapramudya Setya Wandita Warantika Rikma Yuniarini Yusmiyati Yusmiyati